Two Guinness World Records to be broken at all-day sponsored Rave and Ride event for the Motor Neurone Disease Association
Join the 'Fitness Festival' themed event to cycle on indoor studio bikes and to see incredible DJs, all to raise awareness and funds for Motor Neurone Disease (MND) Association
Not a fan of cycling? Come along to support family members and friends taking part and see some great acts and enjoy the festival atmosphere with your friends!
YOU could help to make history and raise vital funds for the MND Association by taking part in a momentous Rave and Ride event being held in Buckinghamshire on May 14th. Join Richard Jones from Stereophonics and more big names in raising awareness of this fatal condition.
Organised by entrepreneur Steven Smith, who lost his mum, Genifer, to MND, the event at Stoke Park, Europe's leading Five Star Hotel, Spa and Country Club, will see individuals and teams of indoor cyclists come together for an all-day sponsored ride with club music provided by some of the biggest DJs from the UK and beyond.
52-year-old Steven Smith (above) from High Wycombe has raised £115,000 for the MND Association and has vowed to continue.
Two world records could also be broken during the day due to the scale of the event and the numbers expected to take part. Over 1000 are already expected to take part.
Sally Light, Chief Executive of the MNDAssociation, said of the challenge, 'It is a wonderful challenge that will help us to ensure that the needs of people with MND are recognised and met. The work of Steven will raise money to be used to fund the work of individuals working towards a cure.'
Steven, who lives with his family in High Wycombe, has already raised an incredible £115,000 for the MND Association from previous Rave and Rides, as well as countless other fundraising adventures, including, The Arctic, several London Marathons and the gruelling L'Etape du Tour cycle race.
He hopes the Rave and Ride in May will push his fundraising total to over £160,000, helping the Association to fund the work of two PhD students, based at its MND Care and Research Centre at Oxford's John Radcliffe Hospital.
He explained: "I will not stop until a cure is found for MND. That is my motivation and that is what keeps me going.
"Myself and my family cared for my Mum and MND took her life in 18 months. She was my best friend. "If I could fund a scientist who helps to find the cure, that would be amazing."
For more information about the event or to register to take part on 14 May visit www.raveandride.com
About motor neurone disease (MND) and the MND Association:
- MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.
- It attacks the nerves that control movement so muscles no longer work. MND does not usually affect the senses such as sight, sound, feeling etc.
- It can leave people locked in a failing body, unable to move, talk and eventually breathe.
- It affects people from all communities.
- It kills around 30% of people within a year of diagnosis, and 50% within 21 months.
- A person's lifetime risk of developing MND is up to 1 in 300.
- Six people per day are diagnosed with MND in the UK.
- It affects up to 5,000 adults in the UK at any one time.
- It kills six people per day in the UK, this is just under 2,200 per year
- It has no cure.
The MND Association was founded in 1979 by a group of volunteers with experience of living with or caring for, someone with MND. Since then, we have grown significantly, with an ever-increasing community of volunteers, supporters and staff, all sharing the same goal - to support people with MND and everyone who cares for them, both now and in the future.
- We improve care and support for people with MND, their families and carers.
- We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND.
- We campaign and raise awareness so the needs of people with MND, and everyone who cares for them, are recognised and addressed by wider society.
Note to editors: For information Daniela Boyd-Waters on 01628 526208 or Daniela@nobull-communications.co.uk .